The Kaiser Family Foundation (KFF) Health News takes a deep dive into how the medical system has not kept up with what it calls an “extraordinary increase in the number of adults with Down syndrome.”

One person they speak with, advocate Charlotte Woodward, says that many general-practice doctors “seem to have little knowledge about adults with Down syndrome” and that adults “should not be expected to seek care at programs housed in children’s hospitals.”

You should read the whole article, which includes pointed anecdotes about people with Down Syndrome whose doctors ignore signs of other medical issues, information on where to find the appropriate medical practitioners and more.